Alison Purseglove's husband, Ian, did not receive adequate palliative care: "The hospital was unprepared for the death and as a result it was, to my sadly expert eyes, extremely badly managed, protracted and distressing for both Ian and me." Read more about Alison Purseglove's husband, Ian, did not receive adequate palliative care: "The hospital was unprepared for the death and as a result it was, to my sadly expert eyes, extremely badly managed, protracted and distressing for both Ian and me."
Rachael Watkins' mother was refused hospice and palliative care due to her hepatitis status. Read more about Rachael Watkins' mother was refused hospice and palliative care due to her hepatitis status.
The Expert Report to the Infected Blood Inquiry: Palliative Care in Advanced Liver Disease noted the funding and commissioning of palliative care services varies throughout the UK. Read more about The Expert Report to the Infected Blood Inquiry: Palliative Care in Advanced Liver Disease noted the funding and commissioning of palliative care services varies throughout the UK.
One witness ('Paul') described a contrast between his difficulty in accessing Hepatitis C treatment and that which he received for HIV. Read more about One witness ('Paul') described a contrast between his difficulty in accessing Hepatitis C treatment and that which he received for HIV.
Describing the situation in Northern Ireland, Dr Joanne McClean noted that "HCV treatment has been predominantly delivered through specialist hepatology services". Read more about Describing the situation in Northern Ireland, Dr Joanne McClean noted that "HCV treatment has been predominantly delivered through specialist hepatology services".
The guidelines from the European Association for the Study of the Liver covered the various types of monitoring appropriate for individuals who have had a diagnosis of Hepatitis C. Read more about The guidelines from the European Association for the Study of the Liver covered the various types of monitoring appropriate for individuals who have had a diagnosis of Hepatitis C.
An article published in the "Journal of Hepatology" titled "EASL Recommendations on Treatment of Hepatitis C" described the optimal management of patients with acute and chronic HCV infections and included recommendations on appropriate follow up. Read more about An article published in the "Journal of Hepatology" titled "EASL Recommendations on Treatment of Hepatitis C" described the optimal management of patients with acute and chronic HCV infections and included recommendations on appropriate follow up.
An article by Isfordink et al was published in "Haemophilia" titled "Liver-related complications before and after successful treatment of chronic hepatitis C virus infection in people with inherited bleeding disorders". Read more about An article by Isfordink et al was published in "Haemophilia" titled "Liver-related complications before and after successful treatment of chronic hepatitis C virus infection in people with inherited bleeding disorders".
An article by La Mura et al was published in "Blood Advances" titled "Residual burden of liver disease after HCV clearance in hemophilia: a word of caution in the era of gene therapy". Read more about An article by La Mura et al was published in "Blood Advances" titled "Residual burden of liver disease after HCV clearance in hemophilia: a word of caution in the era of gene therapy".
In his written statement, Professor Makris recommended that patients with advanced fibrosis or cirrhosis are entered into a hepatocellular screening program, with six-monthly ultrasound scans and regular hepatology follow-up to detect early signs of liver failure. Those with an inherited bleeding disorder who have had Hepatitis C should be seen by a consultant hepatologist, rather than a more junior member of staff. Read more about In his written statement, Professor Makris recommended that patients with advanced fibrosis or cirrhosis are entered into a hepatocellular screening program, with six-monthly ultrasound scans and regular hepatology follow-up to detect early signs of liver failure. Those with an inherited bleeding disorder who have had Hepatitis C should be seen by a consultant hepatologist, rather than a more junior member of staff.