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In a parliamentary written answer, Tony Newton MP stated that "There is no state compensation scheme for those who, like haemophiliacs infected with the AIDS virus, unfortunately suffer adverse effects from their medical treatment."
Published on:
24 July, 2024
In a handwritten note from Jacky Buchan to Caroline Flint it was suggested to reduce running costs to provide more money for support to the Trusts.
Published on:
24 July, 2024
Department of Health officials suggested that an additional £10 million for the Macfarlane Trust might be available as a single payment, rather than as recurrent funding.
Published on:
25 October, 2024
The Macfarlane Trust Newsletter noted that there were ten trustees, six appointed by the Haemophilia Society and four appointed by the Secretary of State for Health.
Published on:
24 July, 2024
In order to increase the level of advice available to the Trustees from the beneficiaries, a general consultative panel was set up.
Published on:
24 July, 2024
From 1990/91 the policy was to restrict grants to "health related" issues.
Published on:
24 July, 2024
A Report by the Department of Health looking into the corporate management of the Macfarlane Trust was published and recommendations were made where necessary.
Published on:
09 October, 2024
The Partnership Sub-Group of the Macfarlane Trust first met in May 1999, having been created to meet recommendations from the Strategic Review: Final Report on the Macfarlane Trust Strategic Review.
Published on:
24 July, 2024
The Macfarlane Trust made proposals to revise the structure of grant payments. This included the requirement of a beneficiary to have a "need". The trustees interpreted "need" as "financially needy".
Published on:
24 July, 2024
Christopher FitzGerald stated in a meeting with the Department of Health that unless more money were given, the Trust could not meet its objectives adequately.
Published on:
24 July, 2024
In a report on the Grant Making Procedures of the Macfarlane Trust, it was identified that changes in funding was necessary; and that the Trust's application forms and literature "should be clear and user friendly and should include...what the trust will and will not support" and include "any upper or lower limits on grant size".
Published on:
24 July, 2024
The Report on the Grant Making Procedures of the Macfarlane Trust noted the Trust was least compliant with that guidance in monitoring and evaluation.
Published on:
24 July, 2024
The NSSC (which included the Chairman and four trustees) met every six weeks and replaced allocation meetings, which used to be where trustees met and allocated grants.
Published on:
24 July, 2024
The NSSC, which made the more difficult decisions on single grants, was said on external review to be an improvement in process.
Published on:
24 July, 2024
The board of trustees noted that "grants for the period were low because only the non-infected community could now apply, save for exceptional circumstances. The chairman asked the NSSC minute taker to ensure that when a grant for a PB was agreed that the exceptional circumstance was noted."
Published on:
24 July, 2024
It was noted in a Macfarlane Trust meeting that earlier the trustees used their discretion to disperse around £500,000 per annum in the form of one-off grants. After the Archer Inquiry there would be twice that amount available for discretionary disbursement.
Published on:
25 October, 2024
Christopher FitzGerald wrote to the Government stating that unless more money were given, the Trust could not meet its objectives adequately.
Published on:
24 July, 2024
Susan Daniels highlighted that widows did not have sufficient funds for everyday living in a financial advisor's report to the the Macfarlane Trust board board.
Published on:
24 July, 2024
In a meeting of the Partnership Group concerns on misinformation on the Trust website and on delays in the overall response time were discussed. It was of concern to the chief executive and head of support services that there was a climate of fear within the registrant community when seeking to approach the chief executive or the office in general.
Published on:
24 July, 2024
In a Macfarlane Trust trustees' meeting the APPG Inquiry report was discussed. It was summed up by one trustee as "as good as could have been expected in the circumstances"; another thought the review flawed from the outset, that the beneficiary community had not commented on it, and the report had not recommended that the Alliance House Organisations be abolished.
Published on:
24 July, 2024
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