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Liz Carroll believed that she and Jan Barlow came at things from a very different perspective, and shared little ground when it came to their approach to matters despite serving the same community.

Published on: 24 July, 2024

The trustees of the Society discussed the alleged comments of Jan Barlow that the Department of Health should wait for as long as possible before making any decision as more people will have died and there will be less people to pay and fight for payment. They decided Liz Carroll should write to Jane Ellison MP stating the view that the administration and system was not fit for purpose, and giving some examples why that was.

Published on: 24 July, 2024

Neil Bateman in his written statement praised the freedom he was given to represent clients and advocate for them against the Department of Work and Pensions and local authorities.

Published on: 24 July, 2024

Roger Evans stated that a trustee tabled a carefully drafted letter about public, aggressive approach to funding negotiations with the Department of Health. Mr Evans believed that the way the letter was drafted made it clear that if the Department of Health did not accept the terms he would have no other choice but to resign.

Published on: 24 July, 2024

Tony Newton MP made a statement to the House of Commons on the making of an ex gratia grant to the Society to enable it to establish a trust fund. It was left up to the Society to decide how to administer the 10 million pound grant from the Government to set up a trust fund.

Published on: 24 July, 2024

The trustees of the Macfarlane Trust agreed, on the recommendation of the Allocations Committee, that the mandate on individual payments made by the administrator and social worker without a trustee's signature should be raised from £500 to £1000.

Published on: 25 October, 2024

It was noted at a Macfarlane Trust meeting that procedures at that time allowed the Allocations Committee more time to resolve complex cases in greater detail and to help develop policy.

Published on: 24 July, 2024

The Macfarlane Trust meeting decided that the infected partners were not entitled to help from the Trust in their own right under the Trust deed, but were entitled to help as dependants during the lifetime of the beneficiary. They should however receive special consideration due to their secondary infection.

Published on: 24 July, 2024

A paper on allocation policy for widows spoke of such grants as the area of expenditure "most vulnerable to criticism by our paymasters as encroaching on the grounds of compensation, and thus could in time affect any decision to allocate any further funds".

Published on: 24 July, 2024

Previously, a user trustee was required to withdraw from trusteeship if they wished to receive any benefit from the Trust. In a Macfarlane Trust meeting the embargo on benefits to trustees was discussed. It was noted that a special dispensation had been sought from the Commissioners but they had been unable to make the exception because of the general trust law.

Published on: 24 July, 2024

In a memo, Brian Bradley (Department of Health) suggested that the Macfarlane and Eileen Trusts would receive a combined extra £400,000 in funding.

Published on: 25 October, 2024

In an email chain, Department of Health officials suggested that an extra £400,000 would be reasonable funding for the Trusts.

Published on: 25 October, 2024

"The Northern Echo" had begun a campaign seeking compensation for people infected with AIDS as a result of haemophilia treatment.

Published on: 24 July, 2024

The campaign by "The Northern Echo" was influenced by Dr Peter Jones.

Published on: 24 July, 2024

A record of a phone call between Liz Carroll (Haemophilia Society) and Roger Evans (Macfarlane Trust), stated that he was very angry about a letter published by the Haemophilia Society and the relationship between the two organisations had been damaged.

Published on: 24 July, 2024

In oral evidence, Peter Stevens stated that when allocating funds to the Macfarlane Trust, the Government gave what they could afford and what they could get away with, and that the Trust was inadequately funded.

Published on: 31 January, 2025

Vaughan Gething raised the matter of a public inquiry during a phone call with Lord James O'Shaughnessy

Published on: 16 August, 2024

Julie Morgan wrote to Jeremy Hunt calling for a UK-wide public inquiry

Published on: 16 August, 2024

There was a Welsh Assembly debate with a unanimous vote from attending Assembly Members for a UK-wide public inquiry

Published on: 16 August, 2024

Parliamentary Under-Secretary of State, Lord James O'Shaughnessy, replied to Julie Morgan stating that the Archer and Penrose Inquiries had not found the Government to be at fault, adding that a public inquiry would be unlikely to provide further information

Published on: 16 August, 2024

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