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Roger Evans stated that the Macfarlane Trust was an arm of the government "whether we like it or not."

Published on: 24 July, 2024

Roger Evans stated in an email to the trustees: "Several of you have asked me what influence DH has over the Macfarlane Trust. The answer is - a lot. The Government (through DH) set up MfT in the first place and could close us down at any time if they so wished."

Published on: 24 July, 2024

Liz Carroll stated in a letter to the Minister that at a meeting between herself, Jan Barlow and Roger Evans, "they expressed the opinion that the Department of Health should wait before responding to Penrose so more people will have died and they will have less to pay out."

Published on: 24 July, 2024

Elizabeth Boyd and Russell Mishcon made a complaint to Jeremy Hunt about the behaviour of the chair, and complained also about Jan Barlow. As to Roger Evans, it said "Since his appointment, the chairman has failed to consult adequately, in our view, with the Board on matters of importance and upon strategy or to take trustees' views into account".

Published on: 24 July, 2024

Peter Stevens sent a letter to Clair Walton which led to a formal complaint against the chair regarding the statements he made in the letter.

Published on: 24 July, 2024

In a letter from Christopher FitzGerald to Clair Walton following their meeting, it was said that "the letter of 13 March 2006 was entirely misguided and misdirected in its tone and approach; in short it should never have been written at all."

Published on: 24 July, 2024

Peter Stevens agreed his use of language was totally inappropriate and went to Cardiff to apologise to Haydn Lewis and his brother in person.

Published on: 24 July, 2024

Following an email from Haydn Lewis, Peter Stevens emailed Martin Harvey to say, "what a monumental waste of time - not just this afternoon, but all the previous hours spent nurturing that lot of moaners."

Published on: 24 July, 2024

Peter Stevens also expressed to Martin Harvey that, "We might see if we can review that when we get round to looking at regpay at the NSSC (that would be a way of pissing off the Lewis contingent)." This was despite his knowing that Haydn Lewis' wife, Gaynor, was herself infected with HIV.

Published on: 24 July, 2024

Peter Stevens was a trustee at the Macfarlane Trust from 1988 until 1992, then again from 1999 when he was invited to rejoin the board of trustees in order to become chair. He remained chair until 2006.

Published on: 24 July, 2024

NSSC went down to one member as a result of trustee turnover, so Patrick Spellman stepped in to chair it, a Grants Committee was set up and Patrick Spellman chaired the first three meetings to get it going.

Published on: 24 July, 2024

Ian Green stated in his statement that he received a letter in September 2018 containing the information that the Macfarlane Trust was considering the transfer of residual funds and assets to the Terrence Higgins Trust.

Published on: 24 July, 2024

Ian Green discussed the relationship between the Macfarlane Trust and the Terrence Higgins Trust, the use of funds and loans were outlined.

Published on: 24 July, 2024

Once the Terrence Higgins Trust accepted the donation from the Macfarlane Trust, they were obliged to deal with the funds received in a restricted manner.

Published on: 24 July, 2024

Liz Carroll became chief executive of the Haemophilia Society in January 2014.

Published on: 24 July, 2024

Liz Carroll believed that she and Jan Barlow came at things from a very different perspective, and shared little ground when it came to their approach to matters despite serving the same community.

Published on: 24 July, 2024

The trustees of the Society discussed the alleged comments of Jan Barlow that the Department of Health should wait for as long as possible before making any decision as more people will have died and there will be less people to pay and fight for payment. They decided Liz Carroll should write to Jane Ellison MP stating the view that the administration and system was not fit for purpose, and giving some examples why that was.

Published on: 24 July, 2024

Neil Bateman in his written statement praised the freedom he was given to represent clients and advocate for them against the Department of Work and Pensions and local authorities.

Published on: 24 July, 2024

Roger Evans stated that a trustee tabled a carefully drafted letter about public, aggressive approach to funding negotiations with the Department of Health. Mr Evans believed that the way the letter was drafted made it clear that if the Department of Health did not accept the terms he would have no other choice but to resign.

Published on: 24 July, 2024

Roger Evans understood that it was suggested photographs of beneficiaries' homes should be taken.

Published on: 24 July, 2024

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