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Russell Mishcon stated in his oral evidence that he presented a draft letter to the Department of Health at a Macfarlane Trust meeting in order to threaten resignation of trustees unless further funding for 2013-14 was made clear.

Published on: 24 July, 2024

According to Alasdair Murray there was no time to run another programme in the Macfarlane Trust to run down the reserves by individual application. However, it would have been better had the applications process been reworked.

Published on: 24 July, 2024

The Department of Health had decided by late 2016 that the administering of benefits should be made through an arm's length body. It then decided in early 2017 that the administration of the schemes be brought in-house.

Published on: 24 July, 2024

Peter Stevens hired Susan Daniels, but she described the Macfarlane Trust in the early 2000s as "the bureaucracy became much more" and "there was [a] total lack of compassion" to which she added "I think they probably felt that I was a rather kind of over emotional woman and that they didn't do anything about it."

Published on: 24 July, 2024

Jude Cohen had said that there was a horrible undercurrent of distrust at the Macfarlane Trust.

Published on: 24 July, 2024

Following verbal complaints Jude Cohen was summarily dismissed and had not been there long enough to claim unfair dismissal.

Published on: 24 July, 2024

Katie Rendle had been appointed to user trustee to conduct a survey which would review the Macfarlane Trust's communications.

Published on: 24 July, 2024

The survey conducted by Katie Rendle had shown that communication had dropped and many were not even aware that there was a website. The next steps following the survey were due to be conducted by Jan Barlow.

Published on: 24 July, 2024

No criteria for decision-making was set for appeals for regpay and the census forms at the Macfarlane Trust.

Published on: 24 July, 2024

Neil Bateman was a contractor for Macfarlane Trust advising and assisting in relation to welfare benefits from 2007. In his witness statement to the Inquiry he explained that he was "given complete freedom to represent clients and to be a vigorous advocate against the DWP [Department for Work and Pensions] and local authorities."

Published on: 24 July, 2024

Neil Bateman was asked to advise on a proposed welfare policy by the Macfarlane Trust describing it as "very complicated". During oral evidence to the Inquiry, he said that "as a general principle, it's not a very good idea to have a separate means test for people who have already been means tested often to death by the DWP...it didn't take into account the costs of children and the costs of taking paid employment."

Published on: 24 July, 2024

During oral evidence to the Inquiry Dr Roger Moore confirmed that statement put across by counsel to the Inquiry which suggested that the Department of Health's view was "that the adverse effects they'd [individuals with haemophilia] suffered were unavoidable".

Published on: 24 July, 2024

During oral evidence to the Inquiry Dr Roger Moore confirmed that a meeting took place between the Haemophilia Society and John Moore, the Secretary of State, in relation to compensation.

Published on: 24 July, 2024

Tony Newton MP made a statement to the House of Commons on the making of an ex gratia grant to the Society to enable it to establish a trust fund. It was left up to the Society to decide how to administer the 10 million pound grant from the Government to set up a trust fund.

Published on: 24 July, 2024

The trustees of the Macfarlane Trust agreed, on the recommendation of the Allocations Committee, that the mandate on individual payments made by the administrator and social worker without a trustee's signature should be raised from £500 to £1000.

Published on: 25 October, 2024

It was noted at a Macfarlane Trust meeting that procedures at that time allowed the Allocations Committee more time to resolve complex cases in greater detail and to help develop policy.

Published on: 24 July, 2024

The Macfarlane Trust meeting decided that the infected partners were not entitled to help from the Trust in their own right under the Trust deed, but were entitled to help as dependants during the lifetime of the beneficiary. They should however receive special consideration due to their secondary infection.

Published on: 24 July, 2024

A paper on allocation policy for widows spoke of such grants as the area of expenditure "most vulnerable to criticism by our paymasters as encroaching on the grounds of compensation, and thus could in time affect any decision to allocate any further funds".

Published on: 24 July, 2024

Previously, a user trustee was required to withdraw from trusteeship if they wished to receive any benefit from the Trust. In a Macfarlane Trust meeting the embargo on benefits to trustees was discussed. It was noted that a special dispensation had been sought from the Commissioners but they had been unable to make the exception because of the general trust law.

Published on: 24 July, 2024

Peter Stevens stated that the Macfarlane Trust trustees had thought that the Government would have viewed the widows and dependants as secondary and of deserving less consideration.

Published on: 24 July, 2024

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