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In his statement, Professor Chris Jones stated that an oversight group had been set up by the Welsh Government to oversee the elimination of Hepatitis across the 7 Welsh health boards through public awareness and improved access to testing.

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An article by La Mura et al was published in "Blood Advances" titled "Residual burden of liver disease after HCV clearance in hemophilia: a word of caution in the era of gene therapy".

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An article by Isfordink et al was published in "Haemophilia" titled "Liver-related complications before and after successful treatment of chronic hepatitis C virus infection in people with inherited bleeding disorders".

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An article published in the "Journal of Hepatology" titled "EASL Recommendations on Treatment of Hepatitis C" described the optimal management of patients with acute and chronic HCV infections and included recommendations on appropriate follow up.

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The guidelines from the European Association for the Study of the Liver covered the various types of monitoring appropriate for individuals who have had a diagnosis of Hepatitis C.

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Describing the situation in Northern Ireland, Dr Joanne McClean noted that "HCV treatment has been predominantly delivered through specialist hepatology services".

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One witness ('Paul') described a contrast between his difficulty in accessing Hepatitis C treatment and that which he received for HIV.

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The Expert Report to the Infected Blood Inquiry: Palliative Care in Advanced Liver Disease noted the funding and commissioning of palliative care services varies throughout the UK.

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Rachael Watkins' mother was refused hospice and palliative care due to her hepatitis status.

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Alison Purseglove's husband, Ian, did not receive adequate palliative care: "The hospital was unprepared for the death and as a result it was, to my sadly expert eyes, extremely badly managed, protracted and distressing for both Ian and me."

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A hospice was not able to carry out paracentesis for Jane Chapman due to lack of expertise and had to transfer her to a nearby hospital.

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A witness's husband was not given the opportunity to be drained of fluid build-up in his stomach.

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The Gordon-Smith family felt let down by the NHS when they learnt that TACE treatment was not successful and the cancer was spreading. There was no follow up from palliative care at that point.

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When Seamus Conway was admitted to the hospital, his family had to fight for the appropriate pain relief for him.

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Seamus Conway was not provided with adequate haemophilic care before he died.

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Debra Pollard, lead nurse specialist at the Royal Free Haemophilia and Thrombosis Centre, recalled her close liason with palliative care but due to stigma attached to HIV, palliative care and some hospices would initially refuse to accept HIV patients.

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Ken Milne was refused a place at Canterbury Hospice because he was HIV positive.

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Marie Curie Hospice told the family of Graham Fox to tell people he had lymphoma and not HIV or AIDs because of the stigma that was attached to it at the time.

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A witness described how "The hospital staff never discussed [my husband's] illness or life expectancy with me. There was very poor communication. I understand he was receiving palliative care in the last week of his life. This was never explained."

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In written evidence, Amanda Beesley described the poor care her husband Andrew received: "We found the treatment we received at St Michael's Hospice in Basingstoke appalling."

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