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Macmillan Cancer Support organised a holiday, psychological support, respite care and relaxation classes for the father of Manuela Sams. The family were told he received "gold standard" palliative care.

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Inquiry gathering further evidence

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Expert reports published

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Timetable and factsheet for expert hearings

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Pam Allen

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Kay Durrant

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Jackie Wilson

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Insight: The work of the Inquiry - Paralegal team

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Inquiry publishes Note from Counsel

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Inquiry’s work after the hearings

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Inquiry publishes additional evidence

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Derek Martindale, a witness to the Inquiry, asked to be tested for HIV as no test was offered or undertaken.

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During oral evidence a witness shared the experience of obtaining their medical records and that it was after trying to make a complaint that she was furnished with "everything, except for the notes".

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Mrs D was told that funding meant treatment decisions were made on a month-by-month basis: "that you wouldn't know who it was going to be until they'd had the meeting that month and decided who was going to get the treatment". There was no support during the wait.

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Dr Hill downplayed the risk of getting AIDS from using Factor VIII concentrate compared to the risk of arthritis by not using it.

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A mother whose son's treatment was changed from cryoprecipitate to Factor 8 concentrate was given no warnings about the products at Charing Cross Hospital

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Alan and Christine Fowle were called to the hopsital and told in person that their son had been infected with HIV when he was nine years old but were given no other information or advice. They were told it was generally a disease in the homosexual community exclusively.

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Mr and Mrs Fowle were told their son might not live another 12 years. They told Christopher of his diagnosis when he was 15. He died aged 21.

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Jackie Britton described her experience at two hospitals. At one hospital "you fought for your six-monthly scans, which could take eight months, and then it was a wait to see your consultant" and contrasted this with her later experience: "with King's [College Hospital] you have the scan in the morning, you see the clinic in the afternoon."

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Matthew Johnson stated in oral evidence that his parents were assured and were told that Factor VIII concentrates was ground-breaking, it was clean and it was as good as good could be.

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