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Michelle Tolley was told by her treating hospital that only eight people were able to receive treatment with DAAs per month. Initially she was eligible for treatment. However, she then was told that due to the hospital losing funding, the number of patients eligible for treatment reduced from eight to two and she was no longer able to receive it.
Published on:
20 September, 2024
Kenneth Dyson's wife was unable to access Harvoni treatment while being treated in Edinburgh due to funding constraints across health boards. She had to travel to Monklands Hospital to be treated.
Published on:
20 September, 2024
Mrs D was told that funding meant treatment decisions were made on a month-by-month basis: "that you wouldn't know who it was going to be until they'd had the meeting that month and decided who was going to get the treatment". There was no support during the wait.
Published on:
20 September, 2024
A witness was refused treatment with DAAs. She paid for a course of DAA treatment - sofosbuvir and daclatasvir - and managed successfully to clear the virus.
Published on:
20 September, 2024
Susan Wathen requested Harvoni treatment from her hospital following a discussion with a professor at the Hepatitis C Trust patient conference. Her hospital subsequently applied to the clinical commissioning group for funding. However this was denied as she was not considered "ill enough" for treatment. She was eventually treated with Harvoni after a two-year delay between diagnosis and receiving treatment.
Published on:
20 September, 2024
Sharon Lowry's late husband, Richard, became aware of Harvoni and was told that he would be suitable for a DAA, but was told "You had to go on to a waiting list." His MP lobbied on his behalf and did receive the treatment.
Published on:
20 September, 2024
Christopher Birtles tried treatment again in 2016: "when the new Harvoni treatment became available ... They had to apply for funding ... They were not prepared to give it to everybody because of the cost. That was wrong because the health service had caused the HCV problem in the first place."
Published on:
20 September, 2024
Neil Cruickshank's medical records state he experienced "Interferon induced psychosis". He described not being given access to a mental health team or support during his treatment.
Published on:
20 September, 2024
Dr Henry Watson discussed with Dr Andy Fraser whether Neil Cruickshank should be put on a different course of treatment, due to his history of 'Interferon induced psychosis'.
Published on:
20 September, 2024
John Boakes described the effect that his first treatment with interferon and ribavirin had on his mental health, including severe mood swings and depression. He described the importance of mental health support for those with Hepatitis C, alongside treatment for physical symptoms.
Published on:
20 September, 2024
Mark Gillyon-Powell deputy director for HCV Elimination & Health Inequalities in NHS England's specialist commissioning directorate, stated that in England there are 23 operational delivery networks which are responsible for the testing, diagnosis and treatment of Hepatitis C.
Published on:
20 September, 2024
Dr Archibald Prentice told the Inquiry about a visit from Department of Health officials to Plymouth, where he was a consultant haematologist, where the officials expressed surprise at his retained correspondence relating to blood supplies concerns, and they removed some papers which were never returned.
Published on:
20 September, 2024
The Department of Health compiled a list of documents dated between 1989-91 in relation to blood transfusion for the purpose of the Hepatitis C litigation.
Published on:
20 September, 2024
The Royal Court of Justice handed down their draft judgment of the "HIV Haemophiliac Litigation" case.
Published on:
20 September, 2024
The DHSC legal team provided closing submissions on behalf of the Department of Health and Social Care and associated bodies in the matter of the Infected Blood Inquiry.
Published on:
20 September, 2024
A document could be retained for second review if it contained the history, organisation or procedures of the Department of Health; details of policy and legislation formulation, implementation and interpretation; details of notable events/persons not available elsewhere; details of major events, developments or trends in political, social, economic, scientific or medical history; and statistical or quantitative research that could be useful for demographic, medical, social or economic history.
Published on:
20 September, 2024
The Inquiry obtained all the minutes and most of the papers of the ACVSB meetings held between 4 April 1989 and 9 February 1993. However, five of the chairman's briefings were not recovered.
Published on:
20 September, 2024
Anita James wrote to Charles Lister saying: "We agreed that in the circumstances we should voluntarily agree to disclosure rather than risk having a costs order inevitably made against the Department".
Published on:
20 September, 2024
Lord Glenarthur wrote a letter to John Maples. He acknowledged the anxiety recent press reports on AIDS may have caused, particularly amongst people with haemophilia and their families, but stated there was no conclusive proof that the disease had been transmitted by American blood products.
Published on:
24 September, 2024
John Maples wrote a letter to Kenneth Clarke (Minister of State, DHSS) regarding a constituent who was concerned about the spread of AIDS and risks from imported blood products.
Published on:
24 September, 2024
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