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The information provided by the Haemophilia Society was not relied upon heavily by its members, however by the mid 1980s, the Society aimed to be an authoritative voice on AIDS and haemophilia to both members of the Society and the wider public.
Published on:
24 July, 2024
Simon Taylor noted that there was a rationale for publishing the fact that they had received legal advice, stating that it was unlikely they would be successful in a legal case against the Government. Firstly, to release the legal advice into the public domain, and secondly to garner support with Parliament for their cause as legal action would likely fail.
Published on:
24 July, 2024
The team focused on Hepatitis C in the Haemophilia Society declared that hepatitis was not a major concern for the Society. Simon Taylor stated in his evidence to the Inquiry that the Society relied on information from Dr Hay who stated that Hepatitis C was not a concern and Professor Preston's concerns were largely ignored.
Published on:
24 July, 2024
In December 1982, Dr Kernoff had begun testing his own haemophilia patients at the Royal Free Hospital to see if their T cell ratios showed a relationship with their receipt of imported commercial concentrates.
Published on:
24 July, 2024
The Council of Europe Committee of Ministers recommended avoiding the use of factor products prepared from large plasma pools where possible.
Published on:
24 July, 2024
Grenada's World in Action Blood Money Part 1 was screened, a documentary about plasma collection from down-and-outs in the US, and the resultant increased risk of hepatitis carried by products made from such plasma.
Published on:
24 July, 2024
Granada's World in Action Blood Money Part 2 was aired.
Published on:
24 July, 2024
Dr Pinching was quoted in a Mail on Sunday article titled "Ban Danger Blood", stating that he "wouldn't dream of giving a patient American blood products".
Published on:
24 July, 2024
An article with the headline "Hospitals using killer blood" was published in the Mail On Sunday, which referred to two people with haemophilia suspected to be suffering from AIDS in the UK.
Published on:
24 July, 2024
In an article on AIDS, Dr Pinching stated that the source of Factor 8 concentrates should be kept under constant review, as well as blood donor policy, to minimise or eliminate risks.
Published on:
24 July, 2024
Dr Peter Kernoff (Director of the Royal Free) stated that "perhaps one reason why the risk of AIDS in haemophilia is so low (around 1 in 1000) is that many patients are immune to it."
Published on:
24 July, 2024
In a letter to the members of the Haemophilia Society, David Watters stated that the Society was not involved in negotiations about a settlement with the Government, and that the role of the Society had been to make it politically expedient for the Government to "settle our case" out of court now rather than in three or four years' time.
Published on:
24 July, 2024
Susan Deacon was advised to reject the Haemophilia Society's claims for financial support for its members who had been infected with Hepatitis C.
Published on:
24 July, 2024
The Society placed a reliance on the views of Professor Bloom who was not only chair of the UKHCDO at the time but a principal point of reference for the Society when seeking advice.
Published on:
24 July, 2024
AIDS was not discussed at Haemophilia Society committee meetings in early 1983.
Published on:
24 July, 2024
Professor Bloom wrote to a local GP, stating "a small percentage of these freeze-dried preparations contain, unavoidably, the virus of serum hepatitis and therefore potentially dangerous to the patient, his relatives etc."
Published on:
24 July, 2024
Dr Walford wrote in a report that 90% of all post-transfusion hepatitis was caused by non-A, non-B Hepatitis which could not be detected by testing. She added that this form of hepatitis could be rapidly fatal.
Published on:
24 July, 2024
The UKHCDO AIDS form filled in by Professor Bloom indicated that the first patient suspected from suffering from AIDS was recorded on 17 March 1983.
Published on:
24 July, 2024
David Watters said, with the benefit of hindsight, that the Haemophilia Society may not have pursued claims for compensation for hepatitis with the enthusiasm it should have done.
Published on:
24 July, 2024
When David Watters joined the Haemophilia Society there were only two other paid employees, part-time secretaries who worked only mornings.
Published on:
24 July, 2024
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