Subscribe to Search results

A briefing paper to the Macfarlane Trust's NSSC noted that social workers and consultants had expressed unhappiness at late changes in policy regarding respite grants.

Published on:

In a report on a visit to Mr and Mrs [Anon] at Birmingham University Hospital, Susan Daniels noted that she had wondered whether "compassion is still an objective of the Trust in dealing with its members" and that "Delaying a decision on somebody who is already in a highly stressful condition can be as bad as a poor decision, perhaps worse."

Published on:

In the meeting minutes of the Macfarlane Trust's NSSC outlining a Head of Services Support Report by Jude Cohen, it was noted that many beneficiaries of the Trust would not let a regional support worker into the house.

Published on:

In a report to the NSSC titled "Redecoration to bedroom, kitchen, living room and school uniform" a series of papers were attached, including a report from Susan Daniels which noted that many registrants felt the Trust was a major stress point in their life.

Published on:

The NSSC recommended that single grants to primary beneficiaries would end after 31 March 2010.

Published on:

In a meeting of the NSSC it was agreed that wider discretionary support might be made available in exceptional circumstances, but this should not be made widely known.

Published on:

Each member of the Macfarlane Trust's NSSC was asked to provide a paragraph giving their view on what warranted "exceptional circumstances".

Published on:

An internal set of Grants Guidelines for 2014/2015 noted that it was "intended for internal use only - it will not be distributed to beneficiaries. A summary of the key areas in which grants will and will not be considered will be produced separately as guidance for grant applicants."

Published on:

The Haemophilia Society published its advice on "The Legal Position on Claims for Compensation arising from HIV Infection". It was noted that the prospect of the majority of compensation claims succeeding was remote based on the difficulty of proving negligence and identifying the proper body or person to sue.

Published on:

Alan Burgess stated in his statement to the Inquiry that Russell Mishcon wanted to send a letter to the Department of Health outlining that it was difficult to discharge their duties as trustees without further funding, but Roger Evans and Jan Barlow refused to send it.

Published on:

Matt Gregory stated to Katie Rendle "I was thinking on my journey home that we had been forced to abandon a course of action that it was obvious that the vast majority of those present favoured."

Published on:

Roger Evans stated that the Macfarlane Trust was an arm of the government "whether we like it or not."

Published on:

Roger Evans stated in an email to the trustees: "Several of you have asked me what influence DH has over the Macfarlane Trust. The answer is - a lot. The Government (through DH) set up MfT in the first place and could close us down at any time if they so wished."

Published on:

Liz Carroll stated in a letter to the Minister that at a meeting between herself, Jan Barlow and Roger Evans, "they expressed the opinion that the Department of Health should wait before responding to Penrose so more people will have died and they will have less to pay out."

Published on:

Elizabeth Boyd and Russell Mishcon made a complaint to Jeremy Hunt about the behaviour of the chair, and complained also about Jan Barlow. As to Roger Evans, it said "Since his appointment, the chairman has failed to consult adequately, in our view, with the Board on matters of importance and upon strategy or to take trustees' views into account".

Published on:

Peter Stevens sent a letter to Clair Walton which led to a formal complaint against the chair regarding the statements he made in the letter.

Published on:

In a letter from Christopher FitzGerald to Clair Walton following their meeting, it was said that "the letter of 13 March 2006 was entirely misguided and misdirected in its tone and approach; in short it should never have been written at all."

Published on:

Peter Stevens agreed his use of language was totally inappropriate and went to Cardiff to apologise to Haydn Lewis and his brother in person.

Published on:

Following an email from Haydn Lewis, Peter Stevens emailed Martin Harvey to say, "what a monumental waste of time - not just this afternoon, but all the previous hours spent nurturing that lot of moaners."

Published on:

Peter Stevens also expressed to Martin Harvey that, "We might see if we can review that when we get round to looking at regpay at the NSSC (that would be a way of pissing off the Lewis contingent)." This was despite his knowing that Haydn Lewis' wife, Gaynor, was herself infected with HIV.

Published on: