Subscribe to Search results

A Department of Health memo noted that the Haemophilia Society wanted an investigation into the alleged lack of information given about the risks of contracting HCV/NANBH from contaminated blood products before 1987, delays in informing people that they were HCV positive and inaccurate reassurances given about the benign nature of HCV.

Published on:

In a meeting between Dr Owen, Reverend Tanner, and others it was mentioned that the Haemophilia Society was keen to encourage greater use of plasmapheresis in order to help achieve self-sufficiency.

Published on:

In a letter to David Watters, Professor Bloom recognised that AIDS had become a "rather serious" disease in the US, but at the time the cause was unknown and it had not been proven to be transmittable through blood products.

Published on:

The Haemophilia Society reported in its 1987 "Bulletin" that the moral obligation to recognise the source of the disaster had been accepted, and the announcement of the establishment of the Macfarlane Trust was "a start".

Published on:

The Haemophilia Society urged members to register their interest to claim compensation and offered to provide the contact details of local lawyers.

Published on:

Haemofact No. 5, published by the Haemophilia Society, advised people with haemophilia, however mildly affected, to continue to accept medication as prescribed by medical staff.

Published on:

Dr Hay informed Graham Barker (Haemophilia Society) that hepatitis should not be a major concern for the Society.

Published on:

Professor Preston informed Graham Barker (Haemophilia Society) that, of those exposed to the Hepatitis C virus, 50% would develop chronic liver disease and 20% cirrhosis.

Published on:

Graham Barker (Haemophilia Society) wrote to clinicians seeking information regarding the scale and nature of hepatitis and haemophilia in order to provide reassurance to members.

Published on:

The Manor House Group succeeded in arranging a meeting with Stephen Dorrell (Secretary of State for Health), a "first" amongst campaign groups in respect of Hepatitis C.

Published on:

The Haemophilia Society wrote to members stating it was seeking equitable treatment in financial terms for those infected with HCV as for those infected with HIV.

Published on:

Even in April 1985, the Haemophilia Society advised people with haemophilia to continue to take medication prescribed by medical staff.

Published on:

The Executive Committee of the Haemophilia Society agreed that the general secretary should review the position of people who were free of HIV infection but still suffered severe liver damage and the prospect of compensation associated with that condition.

Published on:

The Haemophilia Society, Committee B, proposed that a task group should be formed to examine the hepatitis issue.

Published on:

Graham Barker informed Professor Hay that where individuals wished to pursue claims for compensation the Society was doing no more than refer them to an appropriate lawyer.

Published on:

The Irish Haemophilia Society, stated in a letter to David Watters that the Irish Haemophilia Society was under the impression the AIDS risk was being downplayed and was seeking to press the Irish Government to use products made in Ireland to decrease the risk of American commercial products.

Published on:

An article published in The Independent reported that the Government resisted calls to compensate Hepatitis C victims, and in an editorial added "For the Government to rule out all compensation at this stage, as it did yesterday, is both insensitive and unfair".

Published on:

In a confidential paper to the Board of Trustees on the Hepatitis C campaign and future directions, the Haemophilia Society called for a public inquiry.

Published on:

At a Haemophilia Society Policy Committee meeting it was noted that the Committee did not have the resources to tackle the issue of Hepatitis C, nor the co-operation of centre directors.

Published on:

The Haemophilia Annual Report of 1984 noted the serious problems arising from the transmission of AIDS, which was a key area of concern for the Society and dominated its work throughout the year. The Executive Committee has seen its main responsibilities as being in keeping members informed about developments and in emphasising its policy that: "the benefits arising from the continued use of blood products far outweigh any risk involved with regards to AIDS."

Published on: