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A witness described how she was told by a doctor that "it was in my best interest not to record" her husband's HIV status on his death certificate.

Published on: 12 August, 2024

A witness described how Dr Christopher Ludlam took her mother aside when their father died and "explained that he wasn't going to put HIV as the cause of death on my father's death certificate. Dr [Ludlam] said that in his opinion my father would not have wanted it listed as the cause of his death. Instead...I think it states he had a brain haemorrhage."

Published on: 12 August, 2024

A woman was advised to have bronchopneumonia recorded on her husband's death certificate: "The Doctor advised me that this was the best course of action as if AIDS was on the certificate we wouldn't find anyone to bury him and that a cremation would be our only option (which is not what my husband wanted)."

Published on: 12 August, 2024

One woman promised her husband, infected with HIV and Hepatitis C from blood products, "that if he died the word 'HIV' would not be on his death certificate" because he was "extremely worried about people finding out that he had HIV."

Published on: 12 August, 2024

One woman stated that: "There was an inquest into [my husband's] death, which I did not want to be a part of because I couldn't face going through it all so soon after his death and I worried about the press finding out his HIV status."

Published on: 12 August, 2024

One woman described her father's death certificate recording heart failure as the cause of death because "This was at a time when no-one put HIV/AIDS or any related illnesses on death certificates if at all possible for sensitive reasons..."

Published on: 12 August, 2024

A woman stated that when she got home from the Inquest into her husband's death: "there were people from the press surrounding my house. I locked my door and wouldn't answer any questions but they continued to bang on my door and the back wall of the house."

Published on: 12 August, 2024

Mary Grindley said after her husband John's death: "I don't think John would have been too worried about what they wrote but my first thought was for my son. I told them I didn't want HIV or AIDS on the death certificate".

Published on: 12 August, 2024

Deborah James whose brother's death was recorded as solely due to Hodgkin's disease, stated: "Upon Glyn's passing medical staff told my Mother and Father that if they consented to the cause of death being Hodgkin's and not hepatitis C (HCV) then the family could avoid a post mortem."

Published on: 12 August, 2024

One person whose father was infected with Hepatitis C and HIV stated: "We made sure when my father died that his death certificate did not mention HIV or hepatitis C. It just says liver failure and states the symptoms of death rather than the cause to stave off any stigma attached to the hepatitis C infection."

Published on: 12 August, 2024

For Steve Dymond's widow, Su Gorman, it was a matter of considerable importance that the coroner recorded the medical cause of Steve's death as "1c Hepatitis C Infection Acquired from a contaminated blood product" on the record of the inquest.

Published on: 12 August, 2024

The coroner explored the circumstances of Steve Dymond's death and reached a conclusion that: "As a result of the infection with hepatitis C he suffered a variety of mental and physical symptoms which impacted on his university education, his career, his marriage and his ability to have children."

Published on: 12 August, 2024

One person noted of their father that: "The cause of his death was recorded as pneumocystis pneumonia. I am angry that this was recorded on his death certificate, and that there was no reference to HIV or contaminated blood products. At the time, the doctors suggested they were protecting me by not recording HIV, when I think they were protecting themselves."

Published on: 12 August, 2024

Dr Peter Hamilton stated that: "Because of the considerable stigmatisation of patients with Haemophilia and acutely in those with HIV...it is my recollection that Dr Jones had come to an accommodation with the Newcastle Coroner to refrain from writing HIV/AIDS on the Death Certificate..."

Published on: 12 August, 2024

In his written evidence to the Inquiry, John Peaty noted with regard to the inquest into the death of Stuart Fuller that once the Department of Health were invited to become party to the inquest it was noticeable that the long-held government line of 'the risks were not known and benefits of treatment far outweighed any risk' became the prominent view.

Published on: 12 August, 2024

In Philip Cuthbert's written statement, he stated that his father's death certificate not referring to AIDS, HIV, Hepatitis C "or even haemophilia" amounted to them "trying to cover up the truth" even on his death certificate.

Published on: 12 August, 2024

Pursuant to Inquests and Post-Mortem Examinations 1963, in Northern Ireland the coroner or jury was not precluded from making a recommendation to prevent the recurrence of fatalities similar to that in respect of which the inquest was being held.

Published on: 18 October, 2024

Instructions issued to Registrars of death informed them not to enquire about how HIV was contracted if it was included on the death certificate.

Published on: 12 August, 2024

In his statement to the Inquiry, Mark Flynn, for the General Register Office, stated that during the relevant period "A death from infected blood would be, and would have been, considered to be unnatural and therefore requiring referral to a coroner."

Published on: 12 August, 2024

A memo from W Jenkins to Dr Ashley relayed concerns about unsatisfactory causes of death being accepted by registrars and the need for adequate training for junior house officers.

Published on: 12 August, 2024

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