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Sir Robert Owen was invited to be chair of the Board of Trustees of the vCJD Trust.

Published on: 29 July, 2024

Studies had shown that 1 in 2,000 of the population had abnormal prion protein in their appendix and may be infected with vCJD.

Published on: 29 July, 2024

A Department of Health press release recommended the use of recombinant Factor 8 as the first choice of treatment for those with haemophilia.

Published on: 29 July, 2024

Professor Collinge told the Inquiry about the progression of vCJD, stating that about 1 in 5,000 people will develop it during their lifetime.

Published on: 29 July, 2024

Professor Ironside told the Inquiry that there had been 178 cases of vCJD in the UK identified as definite (supported by post-mortem) or probable (no post-mortem), though the latter category was virtually certain.

Published on: 29 July, 2024

In Dr Hewitt's oral evidence she referred to a case where a recipient developed vCJD, whose family had said that "If they had known that he had been at risk, his last few months would have been dealt with differently...they would have known what they were dealing with, or what they were likely to be dealing with."

Published on: 29 July, 2024

A man infected with Hepatitis C told the Inquiry that after being told he was "at-risk" for public health purposes he noticed a significant change in how he was treated by the medical profession, having been made to feel dirty and experiencing frustrating last minute changes of plan.

Published on: 29 July, 2024

A man was refused a liver biopsy as part of care for Hepatitis B and C.

Published on: 29 July, 2024

The "Expert Report to the Infected Blood Inquiry: Statistics" was produced, noting the statistic that no new case of vCJD has been identified since 2016.

Published on: 29 July, 2024

SEAC considered the results of two studies in "Nature" (in advance of their publication at the start of October 1997) and became convinced that the evidence of the link between BSE and vCJD had become "compelling".

Published on: 29 July, 2024

A review of three studies conducted between 1995 and 2014 of the prevalence with which abnormal prion proteins seen in samples of appendices removed at operation (hence "appendix studies", as they are known) found that 1 in 2,000 of the population had abnormal prion protein in their appendix.

Published on: 29 July, 2024

Mr AN told the Inquiry of having to insist upon procedures being carried out in the face of unwillingness from clinicians, and of then being made to wait around until the end of the patient list before being seen, and of having had procedures cancelled on the basis that there was no suitable equipment available.

Published on: 29 July, 2024

Morwenna Carrington told the Inquiry about reasons given by the Department of Health as to why a product was not adopted by the NHS in 2007 "as it did not achieve a category 1 rating from the RRP [Rapid Review Panel]. All manufacturers of products are required to have a category 1 rating to be suitable for the NHS. Other manufacturers developing similar pre-soaks also did not achieve a category 1 rating from the RRP and were not recommended for use in the NHS."

Published on: 29 July, 2024

NHS National Institute for Health and Clinical Excellence published the article "Patient safety and reduction of risk of transmission of Creutzfeldt-Jakob disease (CJD) via interventional procedures".

Published on: 29 July, 2024

"Transmissible Spongiform Encephalopathy Agents: Safe Working and the Prevention of Infection" was published as an annex - this guidance made it clear that patient care should not be prejudiced as a result of the procedures to be followed in identifying patients at an increased risk of vCJD.

Published on: 29 July, 2024

A briefing paper for the Lord President of the Privy Council commented that the Social Services Secretary now proposed a one-off grant of up to £10 million to the Haemophilia Society to be distributed to cases of need.

Published on: 25 October, 2024

John Major wrote to Tony Newton, concerned about the precedent and recommending that the government "listen only at this stage" to the Haemophilia Society with regard to compensation for people with haemophilia who had been infected with HIV, "with no implication that the Government will take action."

Published on: 29 July, 2024

A handwritten note on a copy of Tony Newton's minute on compensation for people with haemophilia stated "Prime Minister! This is a major about-turn. Content?"

Published on: 29 July, 2024

A minute from John O'Sullivan (an adviser in Number 10) to the Prime Minister expressed agreement with the drift of Tony Newton's memorandum on compensation for people with haemophilia.

Published on: 29 July, 2024

In his reply to a parliamentary question asking when the DHSS had first become aware of AIDS and that AIDS was sexually transmitted, and could be transmitted through blood and blood products, Tony Newton stated: "Evidence that the AIDS infection could also be transmitted by blood transfusion emerged from the United States of America in 1983."

Published on: 29 July, 2024

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