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Peter Stevens was a trustee at the Macfarlane Trust from 1988 until 1992, then again from 1999 when he was invited to rejoin the board of trustees in order to become chair. He remained chair until 2006.
Published on:
24 July, 2024
NSSC went down to one member as a result of trustee turnover, so Patrick Spellman stepped in to chair it, a Grants Committee was set up and Patrick Spellman chaired the first three meetings to get it going.
Published on:
24 July, 2024
Ian Green stated in his statement that he received a letter in September 2018 containing the information that the Macfarlane Trust was considering the transfer of residual funds and assets to the Terrence Higgins Trust.
Published on:
24 July, 2024
Ian Green discussed the relationship between the Macfarlane Trust and the Terrence Higgins Trust, the use of funds and loans were outlined.
Published on:
24 July, 2024
Once the Terrence Higgins Trust accepted the donation from the Macfarlane Trust, they were obliged to deal with the funds received in a restricted manner.
Published on:
24 July, 2024
Liz Carroll became chief executive of the Haemophilia Society in January 2014.
Published on:
24 July, 2024
Liz Carroll believed that she and Jan Barlow came at things from a very different perspective, and shared little ground when it came to their approach to matters despite serving the same community.
Published on:
24 July, 2024
The trustees of the Society discussed the alleged comments of Jan Barlow that the Department of Health should wait for as long as possible before making any decision as more people will have died and there will be less people to pay and fight for payment. They decided Liz Carroll should write to Jane Ellison MP stating the view that the administration and system was not fit for purpose, and giving some examples why that was.
Published on:
24 July, 2024
Neil Bateman in his written statement praised the freedom he was given to represent clients and advocate for them against the Department of Work and Pensions and local authorities.
Published on:
24 July, 2024
Roger Evans stated that a trustee tabled a carefully drafted letter about public, aggressive approach to funding negotiations with the Department of Health. Mr Evans believed that the way the letter was drafted made it clear that if the Department of Health did not accept the terms he would have no other choice but to resign.
Published on:
24 July, 2024
Roger Evans understood that it was suggested photographs of beneficiaries' homes should be taken.
Published on:
24 July, 2024
When chair, Roger Evans had concerns over beneficiaries being essentially subjected to a means test.
Published on:
24 July, 2024
The adoption of "exceptional circumstances" as the principal criterion for assessing grant applications occurred without first seeking approval from the board and "exceptional circumstances" were never precisely defined.
Published on:
24 July, 2024
Roger Evans stated in his oral evidence that the NSSC had become bureaucratic in its approach to assessing applications. He described the NSSC as having introduced some of its own criteria to the decision-making process.
Published on:
24 July, 2024
There was enough dissatisfaction with the process among beneficiaries that it reached Ailsa Wight at the Department of Health who referred to it in an email to Roger Evans.
Published on:
24 July, 2024
When chair, Roger Evans, recognised that aspects of the system were "humiliating and intrusive" and "the whole thing was not the right way to go about it".
Published on:
24 July, 2024
During oral evidence to the Infected Blood Inquiry, Roger Evans incorrectly asserted that the Macfarlane Trust needed to obtain money (reserves) from the Department of Health. This was later corrected the following morning in oral evidence to the Inquiry.
Published on:
24 July, 2024
In oral evidence to the Infected Blood Inquiry, Roger Evans suggested that the Board of the Macfarlane Trust became more "relaxed" after two individuals left and that he was being "quite firm on certain issues".
Published on:
24 July, 2024
In oral evidence to the Infected Blood Inquiry, Roger Evans explained that while he was chair of the Macfarlane Trust they tried to be "consistent and transparent" with regard to the allocation of monies to beneficiaries.
Published on:
24 July, 2024
In oral evidence to the Infected Blood Inquiry, Roger Evans explained that "there was some significant dissatisfaction between about 2012 and 2014 of the decision-making approaches of the NSSC" on behalf of beneficiaries.
Published on:
24 July, 2024
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