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There may have been input from members of the Medical Advisory Panel which was not passed on by the Society's internal Blood Products Sub-Committee, as arguably it should have been.
Published on:
24 July, 2024
At the outset of her appointment as CEO of the Haemophilia Society, Karin Pappenheim was given to understand that the campaign for compensation for people with haemophilia infected with Hepatitis C was a very high priority.
Published on:
24 July, 2024
The Society, to save costs, chose to use a single low-cost freelancer for selected public affairs and campaign functions.
Published on:
24 July, 2024
From the Society's perspective the announcement of the setup of the Skipton Fund came out of the blue.
Published on:
24 July, 2024
The Society did not specifically campaign for a scheme which would provide financial support for certain groups, such as the bereaved or those caring for family members or partners who were infected.
Published on:
24 July, 2024
The Department of Health and Social Security was of the view that hepatitis was a serious disease and unless the intention was to process the plasma separately it would be impossible to prevent contamination of the UK material with imported hepatitis viruses.
Published on:
24 July, 2024
Susan Deacon did not want to sign the pre-prepared letter of rejection for the Haemophilia Society's claims for financial support for its members who had been infected with Hepatitis C, without at least meeting delegates from the Society.
Published on:
24 July, 2024
Simon Taylor conveyed to the Inquiry that the Society principally relied upon the advice given to it by its Medical Advisory Panel, which did not meet in person and advice was relayed verbally.
Published on:
24 July, 2024
David Watters had concerns that the Medical Advisory Panel was not getting the most unbiased information. He had concerns that appointments to the Medical Advisory Panel in the 1980s were nepotistic and the source of information was not unbiased. These concerns led to a review of the panel in the 1990s.
Published on:
24 July, 2024
The information provided by the Haemophilia Society was not relied upon heavily by its members, however by the mid 1980s, the Society aimed to be an authoritative voice on AIDS and haemophilia to both members of the Society and the wider public.
Published on:
24 July, 2024
Simon Taylor noted that there was a rationale for publishing the fact that they had received legal advice, stating that it was unlikely they would be successful in a legal case against the Government. Firstly, to release the legal advice into the public domain, and secondly to garner support with Parliament for their cause as legal action would likely fail.
Published on:
24 July, 2024
The team focused on Hepatitis C in the Haemophilia Society declared that hepatitis was not a major concern for the Society. Simon Taylor stated in his evidence to the Inquiry that the Society relied on information from Dr Hay who stated that Hepatitis C was not a concern and Professor Preston's concerns were largely ignored.
Published on:
24 July, 2024
In December 1982, Dr Kernoff had begun testing his own haemophilia patients at the Royal Free Hospital to see if their T cell ratios showed a relationship with their receipt of imported commercial concentrates.
Published on:
24 July, 2024
The Council of Europe Committee of Ministers recommended avoiding the use of factor products prepared from large plasma pools where possible.
Published on:
24 July, 2024
Grenada's World in Action Blood Money Part 1 was screened, a documentary about plasma collection from down-and-outs in the US, and the resultant increased risk of hepatitis carried by products made from such plasma.
Published on:
24 July, 2024
Granada's World in Action Blood Money Part 2 was aired.
Published on:
24 July, 2024
Dr Pinching was quoted in a Mail on Sunday article titled "Ban Danger Blood", stating that he "wouldn't dream of giving a patient American blood products".
Published on:
24 July, 2024
An article with the headline "Hospitals using killer blood" was published in the Mail On Sunday, which referred to two people with haemophilia suspected to be suffering from AIDS in the UK.
Published on:
24 July, 2024
In an article on AIDS, Dr Pinching stated that the source of Factor 8 concentrates should be kept under constant review, as well as blood donor policy, to minimise or eliminate risks.
Published on:
24 July, 2024
Dr Peter Kernoff (Director of the Royal Free) stated that "perhaps one reason why the risk of AIDS in haemophilia is so low (around 1 in 1000) is that many patients are immune to it."
Published on:
24 July, 2024
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