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From the Society's perspective the announcement of the setup of the Skipton Fund came out of the blue.

Published on: 24 July, 2024

The Society did not specifically campaign for a scheme which would provide financial support for certain groups, such as the bereaved or those caring for family members or partners who were infected.

Published on: 24 July, 2024

The Department of Health and Social Security was of the view that hepatitis was a serious disease and unless the intention was to process the plasma separately it would be impossible to prevent contamination of the UK material with imported hepatitis viruses.

Published on: 24 July, 2024

Susan Deacon did not want to sign the pre-prepared letter of rejection for the Haemophilia Society's claims for financial support for its members who had been infected with Hepatitis C, without at least meeting delegates from the Society.

Published on: 24 July, 2024

Simon Taylor conveyed to the Inquiry that the Society principally relied upon the advice given to it by its Medical Advisory Panel, which did not meet in person and advice was relayed verbally.

Published on: 24 July, 2024

David Watters had concerns that the Medical Advisory Panel was not getting the most unbiased information. He had concerns that appointments to the Medical Advisory Panel in the 1980s were nepotistic and the source of information was not unbiased. These concerns led to a review of the panel in the 1990s.

Published on: 24 July, 2024

The information provided by the Haemophilia Society was not relied upon heavily by its members, however by the mid 1980s, the Society aimed to be an authoritative voice on AIDS and haemophilia to both members of the Society and the wider public.

Published on: 24 July, 2024

Simon Taylor noted that there was a rationale for publishing the fact that they had received legal advice, stating that it was unlikely they would be successful in a legal case against the Government. Firstly, to release the legal advice into the public domain, and secondly to garner support with Parliament for their cause as legal action would likely fail.

Published on: 24 July, 2024

The team focused on Hepatitis C in the Haemophilia Society declared that hepatitis was not a major concern for the Society. Simon Taylor stated in his evidence to the Inquiry that the Society relied on information from Dr Hay who stated that Hepatitis C was not a concern and Professor Preston's concerns were largely ignored.

Published on: 24 July, 2024

In December 1982, Dr Kernoff had begun testing his own haemophilia patients at the Royal Free Hospital to see if their T cell ratios showed a relationship with their receipt of imported commercial concentrates.

Published on: 24 July, 2024

The Council of Europe Committee of Ministers recommended avoiding the use of factor products prepared from large plasma pools where possible.

Published on: 24 July, 2024

Grenada's World in Action Blood Money Part 1 was screened, a documentary about plasma collection from down-and-outs in the US, and the resultant increased risk of hepatitis carried by products made from such plasma.

Published on: 24 July, 2024

Granada's World in Action Blood Money Part 2 was aired.

Published on: 24 July, 2024

Dr Pinching was quoted in a Mail on Sunday article titled "Ban Danger Blood", stating that he "wouldn't dream of giving a patient American blood products".

Published on: 24 July, 2024

An article with the headline "Hospitals using killer blood" was published in the Mail On Sunday, which referred to two people with haemophilia suspected to be suffering from AIDS in the UK.

Published on: 24 July, 2024

In an article on AIDS, Dr Pinching stated that the source of Factor 8 concentrates should be kept under constant review, as well as blood donor policy, to minimise or eliminate risks.

Published on: 24 July, 2024

Dr Peter Kernoff (Director of the Royal Free) stated that "perhaps one reason why the risk of AIDS in haemophilia is so low (around 1 in 1000) is that many patients are immune to it."

Published on: 24 July, 2024

In a letter to the members of the Haemophilia Society, David Watters stated that the Society was not involved in negotiations about a settlement with the Government, and that the role of the Society had been to make it politically expedient for the Government to "settle our case" out of court now rather than in three or four years' time.

Published on: 24 July, 2024

Susan Deacon was advised to reject the Haemophilia Society's claims for financial support for its members who had been infected with Hepatitis C.

Published on: 24 July, 2024

The Society placed a reliance on the views of Professor Bloom who was not only chair of the UKHCDO at the time but a principal point of reference for the Society when seeking advice.

Published on: 24 July, 2024

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