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The results of the consultation on the terms of the scheme from April 2017 onwards led to Vaughan Gething making a written statement setting out the new arrangements for a Welsh scheme to be administered by Velindre NHS Trust through the NHS Wales Shared Services Partnership.

Published on: 30 July, 2024

The Scottish Government asked Professor David Goldberg to establish and preside over an expert group to assess the health and wellbeing of individuals, chronically infected with the Hepatitis C virus who had not yet progressed to advanced Hepatitis C.

Published on: 30 July, 2024

The expert group on Hepatitis C considered whether a "method, permitting the robust and rigorous assessment of the impact of hepatitis C on the individual who has not progressed to advanced liver disease, could be developed and command the confidence of both assessors (clinical staff) and assessees (patients)."

Published on: 30 July, 2024

The expert group on Hepatitis C examined the English model where, to qualify, an individual had to answer two questions regarding their Hepatitis C infection.

Published on: 30 July, 2024

There was a general agreement in Scotland that the English model should not be followed.

Published on: 30 July, 2024

The Scottish group on Hepatitis C noted that any assessment which was just clinically-based would ignore the very considerable non-clinical impacts as described in its report.

Published on: 30 July, 2024

The group on Hepatitis C unanimously favoured people with chronic Hepatitis C, including those who had cleared their virus through treatment, or their widows, widowers or partners who were eligible for support being asked to self-declare Hepatitis C impact.

Published on: 30 July, 2024

The approach in Scotland was entirely based on trusting the judgement of the potential applicant, and there was no need for a healthcare professional to be involved.

Published on: 30 July, 2024

The Review Group recommended that provision should be made for those under the scheme as "Stage one" recipients to self-assess as minimally affected, moderately affected or severely affected.

Published on: 30 July, 2024

In his written statement to the Inquiry, Bill Wright stated that the Group focused on the lack of trust felt by survivors and: "On the basis that the mental health impacts were 'incontrovertible', provision should be made for those under the scheme as 'Stage one' recipients to self-assess as minimally affected, moderately affected or severely affected."

Published on: 30 July, 2024

On the financial and clinical review groups Bill Wright commented in his written evidence to the Inquiry: "I felt that the voices of the infected and affected had, for once, been listened to."

Published on: 30 July, 2024

In her oral evidence to the Inquiry, Samantha Baker said that the Scottish Government and SIBSS had made a number of other changes to the scheme as a result of stakeholder or beneficiary feedback.

Published on: 30 July, 2024

In her oral evidence to the Inquiry, Samantha Baker said the UK Government announced it would provide funding to enable broad parity of annual and lump sum payments between the four national schemes. Equivalent statements were made in Wales and Northern Ireland but as the Scottish Government was in a pre-election period, a corresponding statement was not made but an indicative statement was provided on the SIBSS website and within the next newsletter.

Published on: 30 July, 2024

The SIBSS website published a summary of changes to the scheme payments in light of the UK Government announcement of 25 March.

Published on: 30 July, 2024

In a written statement by the Welsh Government it was stated that "The enhanced payment will be equivalent to the current rate of payment for those at Stage 2 hepatitis C infection, which is 18,500 per annum."

Published on: 30 July, 2024

In a document entitled "Infected Blood: Parity of support across - UK" it was stated that the "Cabinet Office was keen for any announcements be made prior to the Infected Blood Inquiry resuming their gathering of evidence from 30 April 2019...And to make an announcement by 30 April, it was considered that we would not be able to address the cross-UK parity question within the time allowed."

Published on: 30 July, 2024

In an email from Tim Jones to Ailsa Wight and others it was stated that a meeting had been convened with David Lidington and some representatives of the infected and affected where they presented 2 papers for consideration.

Published on: 30 July, 2024

Sir Brian Langstaff, Chairman of the Infected Blood Inquiry, sent a letter to David Lidington, Minister for the Cabinet Office, in relation to the commemoration event before the Inquiry's preliminary hearings and raised the issue of access to financial and psychological support.

Published on: 30 July, 2024

In his written statement William Vineall stated that a change in the EIBSS was implemented in July 2019 which meant that discretionary income top-ups were no longer part of the support scheme for infected persons and non-discretionary annual payments were increased.

Published on: 30 July, 2024

Within her written statement to the Inquiry Jackie Doyle-Price reflected how she was able to achieve an uplift in payments to achieve parity with Scotland

Published on: 30 July, 2024

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