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Daniel Eve explained NHS England funded off-label usage of recombinant blood products for post-pubertal children with Von Willebrand Disease. NHS England is in the early stages of considering the possibility of off-label usage for patients under 12.

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An article on the variation in Hepatitis C services in the UK was published, which found that the majority of patients were not receiving antiviral treatment, in contrast with practice in Europe.

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Clinical guidelines on the management of hepatitis C were published.

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World Health Organisation Fact Sheet on Palliative Care defined palliative care as an approach that improves the quality of life of patients facing problems associated with life threatening illness.

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The psychosocial expert group reported to the Inquiry that a breakdown in trust between a patient and healthcare provider has been shown to have deleterious effects on quality of care across all serious health problems. Having to continue attending for healthcare in the treatment setting where the infected blood had been given was clearly "a major source of distress for many individuals."

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Jean Smith explained the difficulties she encountered in accessing treatment for Hepatitis C.

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A witness explained the difficulties she experienced in accessing treatment for Hepatitis C.

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A witness found that when her brother was dying "There was no palliative care in place; none of the medical team spoke to our mother, nor me or my sister."

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The Department of Health maintained in their response to campaigners that "it is for clinicians to decide whether to use plasma-based factor VIII or recombinant factor VIII."

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The Recombinant Factor VIII Users' Group was formed. It consisted of haemophilia centre directors prescribing recombinant Factor 8.

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John Conway described the difficulty of securing adequate pain relief for his brother, Seamus Conway.

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Pete Longstaff and his wife, Carol, noted that Peter had first requested recombinant in 1995 and been turned down in March 1996: "Peter and other haemophiliacs were repeatedly exposed to vCJD after that period and this exposure to vCJD could have been avoided in many cases."

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Rosemary Devine described the difficulty of securing adequate pain relief for her brother, Seamus Conway.

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Maria Conway described watching her brother, Seamus Conway, "crying out in pain". Seamus was infected with the Hepatitis C from contaminated blood products. He died from liver cancer.

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Patricia Kelly described how her brother, Seamus Conway, suffered in his last few days.

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Professor Pratima Chowdary explained the UKHCDO is still pushing for access to recombinant for all since recombinant von Willebrand Factor is not yet licensed for children.

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The siblings of Seamus Conway gave evidence to the Inquiry. They described the pain Seamus was in prior to his death and the difficulty of securing adequate pain relief for him.

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Pe Rae told the Inquiry how insensitive communication of terminal illness affects those receiving the news.

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Paula Watt explained how her brother Gary's palliative care was very poor: "His care was left pretty much to my mother."

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Northern Ireland has the Palliative Care in Partnership Programme with shared principles including that palliative care is not just about the last weeks or days of life.

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