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Pe Rae described how insensitive communication of terminal illness affects those receiving the news.

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Ira Hill described various shortcomings in the end of life care received by her husband.

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Julia Borthwick described how her father was sent home by a hospital with no medication, no counselling and no palliative care.

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Linda Cannon described a lack of support after a doctor recommended that a Do Not Resuscitate order be given to her husband.

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A witness described being a full-time carer for her mother for six months.

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Dr Sarah Gough described a lack of input from palliative care despite her father's very poor prognosis.

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Fraser Bissett described how no nurse came to visit his father except when he was on his death bed. No psychological support was offered.

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Nurses held the witness' father's hand as he died, they also attended his funeral.

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Nurses visited 4 times a day in the end stages of life.

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When asked about palliative care in Scotland, Professor John Dillon stated implementation of standards of care which are being formulated by professional societies will be via local bids for funding services, unless there is a directive government policy.

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Caroline Leonard, director of surgery and specialist services at the Belfast Health and Social Care Trust, highlighted that delivering palliative care well is not necessarily easy.

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James Sanderson, director of Community Health and Personalised Care at NHS England, explained palliative and end of life care is delivered by, and across a range of, local and national statutory and voluntary organisations.

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Work was ongoing to review the funding of palliative and end of life care services across Wales.

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The first recombinant factor product was Factor 8. The recombinant Factor 8 within the product, which was the only active ingredient, constituted less than 1% by volume.

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Professors Edward Tuddenham and Mike Laffan wrote in the British Medical Journal that: "Recombinant factor VIII is therefore the treatment of choice, given its freedom from viruses derived from plasma..."

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Dr Christine Lee and Dr Brian Colvin wrote to the Secretary of State for Health, Stephen Dorrell, to argue the case for payment of the costs of treatment with recombinant Factor 8 concentrate.

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Dr Geoffrey Savidge, wrote to the Secretary of State for Health, Stephen Dorrell, stating that recombinant Factor 8 "represents the safest product available to patients" and sought reassurances that it would remain affordable.

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The Haemophilia Society wrote to the Chancellor of the Exchequer, Kenneth Clarke, and asked him to reverse the VAT decision regarding recombinant product in the forthcoming budget. It described it as "vital" that this "new, safer product should be available, at least to young children."

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A report in the Daily Telegraph quoted Dr Winter stating that in respect of the VAT increase that "No one doubts that recombinant Factor VIII is the best treatment. It is the safest and it is the future."

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Dr Savidge sent a letter to Kenneth Clarke regarding Recombinant Factor VIII and VAT.

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