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Professor Bloom was heavily influential over the Society, however the Society did not seek advice from anyone else.

Published on: 24 July, 2024

Any doubts that the Society may have had about imported products were not expressed to the membership, nor did they lobby against the use of the pre-March US products.

Published on: 24 July, 2024

The membership had become aware of a crisis looming and that damage may have already been done.

Published on: 24 July, 2024

The Society had not been aware of another viable alternative and went along with the advice that they were given.

Published on: 24 July, 2024

Christopher FitzGerald commented in his statement to the Inquiry that he was disappointed the Government had not taken the opportunity provided by the Archer Inquiry to avoid making payments on a discretionary basis.

Published on: 24 July, 2024

Christopher FitzGerald wrote to the Government to complain that unless more money were given, the Trust could not meet its objectives adequately and said the same to officials, though the Archer Inquiry was his main hope.

Published on: 24 July, 2024

Christopher FitzGerald was given assurance in 2008 that there would be annual funding indefinitely.

Published on: 24 July, 2024

Christopher FitzGerald stated that during his time in office, guidelines were available but not necessarily circulated or published.

Published on: 24 July, 2024

The Society did not read medical and scientific information with other bodies, such as the either the Irish society or the US society. However, David Watters confirmed in his oral evidence that there were regular meetings with the Irish Haemophilia Society.

Published on: 24 July, 2024

David Watters agreed in his oral evidence that it had been somewhat odd for the Society to share negative advice about the prospects of litigation with their members. Giving out an adverse opinion to third parties, which had been confidential to the Society, was waiving confidentiality.

Published on: 24 July, 2024

Peter Stevens stated in his oral evidence that the Eileen Trust always suggested to registrants to try other fund options so that the Eileen Trust was a fallback.

Published on: 24 July, 2024

Neil Bateman was a contractor for Macfarlane Trust advising and assisting in relation to welfare benefits from 2007. In his witness statement to the Inquiry he explained that he was "given complete freedom to represent clients and to be a vigorous advocate against the DWP [Department for Work and Pensions] and local authorities."

Published on: 24 July, 2024

Neil Bateman was asked to advise on a proposed welfare policy by the Macfarlane Trust describing it as "very complicated". During oral evidence to the Inquiry, he said that "as a general principle, it's not a very good idea to have a separate means test for people who have already been means tested often to death by the DWP...it didn't take into account the costs of children and the costs of taking paid employment."

Published on: 24 July, 2024

Although the Eileen Trust was administered by the same people as administered the MacFarlane Trust, the Eileen Trust's Board made the decisions which it thought best for the Eileen Trust and did not strictly follow the MacFarlane Trust's policies.

Published on: 24 July, 2024

Regular contact with office staff and case workers allowed registrants of the Eileen Trust to know what they could apply for and although there were subsequent handbooks that were budgeted to be produced from 2002 - 2011, from around 2001/02 the Board decided that newsletters and speaking to caseworkers were the best way to keep in contact with registrants.

Published on: 24 July, 2024

Jude Cohen had said that there was a horrible undercurrent of distrust at the Macfarlane Trust.

Published on: 24 July, 2024

Following verbal complaints Jude Cohen was summarily dismissed and had not been there long enough to claim unfair dismissal.

Published on: 24 July, 2024

Katie Rendle had been appointed to user trustee to conduct a survey which would review the Macfarlane Trust's communications.

Published on: 24 July, 2024

The survey conducted by Katie Rendle had shown that communication had dropped and many were not even aware that there was a website. The next steps following the survey were due to be conducted by Jan Barlow.

Published on: 24 July, 2024

No criteria for decision-making was set for appeals for regpay and the census forms at the Macfarlane Trust.

Published on: 24 July, 2024

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