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John Conway described the difficulty of securing adequate pain relief for his brother, Seamus Conway.

Published on: 20 September, 2024

Pete Longstaff and his wife, Carol, noted that Peter had first requested recombinant in 1995 and been turned down in March 1996: "Peter and other haemophiliacs were repeatedly exposed to vCJD after that period and this exposure to vCJD could have been avoided in many cases."

Published on: 20 September, 2024

Rosemary Devine described the difficulty of securing adequate pain relief for her brother, Seamus Conway.

Published on: 20 September, 2024

Maria Conway described watching her brother, Seamus Conway, "crying out in pain". Seamus was infected with the Hepatitis C from contaminated blood products. He died from liver cancer.

Published on: 20 September, 2024

Patricia Kelly described how her brother, Seamus Conway, suffered in his last few days.

Published on: 20 September, 2024

Professor Pratima Chowdary explained the UKHCDO is still pushing for access to recombinant for all since recombinant von Willebrand Factor is not yet licensed for children.

Published on: 20 September, 2024

The siblings of Seamus Conway gave evidence to the Inquiry. They described the pain Seamus was in prior to his death and the difficulty of securing adequate pain relief for him.

Published on: 20 September, 2024

Pe Rae told the Inquiry how insensitive communication of terminal illness affects those receiving the news.

Published on: 20 September, 2024

Paula Watt explained how her brother Gary's palliative care was very poor: "His care was left pretty much to my mother."

Published on: 20 September, 2024

Northern Ireland has the Palliative Care in Partnership Programme with shared principles including that palliative care is not just about the last weeks or days of life.

Published on: 20 September, 2024

In Wales palliative care is not fully commissioned since the health boards work with the voluntary sector.

Published on: 20 September, 2024

Letter from Welsh CMO, Dr Deirdre Hine, to doctors containing guidance and procedures for the look-back exercise seeking to identify recipients of blood or blood components from donors now known to be carriers of Hepatitis C.

Published on: 17 October, 2024

Letter from Dr Henrietta Campbell, CMO in Northern Ireland, to doctors containing guidance and procedures for the look-back exercise seeking to identify recipients of blood or blood components from donors now known to be carriers of Hepatitis C.

Published on: 20 September, 2024

Letter from Scottish CMO, Dr Robert Kendell, to doctors containing guidance and procedures for the look-back exercise seeking to identify recipients of blood or blood components from donors now known to be carriers of Hepatitis C.

Published on: 20 September, 2024

Graham Barker of the Haemophilia Society wrote to the Department of Health again seeking an update on potential initiatives to improve the understanding, treatment and management of Hepatitis C.

Published on: 20 September, 2024

Dr Hilary Pickles described the costs of treating a severe haemophiliac as "astronomic".

Published on: 20 September, 2024

Within a memo to Dr Doyle, Dr Rejman wrote that he would agree that Dr Pickles that some fundholders might well not be happy about paying for haemophilia patients, some of whom may cost £250,000 per annum on a recurring basis.

Published on: 10 October, 2024

Within his evidence to the Inquiry Jeremy Hunt explained the Prime Minister preferred equity between those with Hep C and those with HIV

Published on: 20 September, 2024

Randolph Peter Gordon-Smith contracted Hepatitis C, which later developed into hepatocellular cancer. His daughters cared for him after chemotherapy.

Published on: 20 September, 2024

Randolph Peter Gordon-Smith discussed alternative treatment options with his oncologist.

Published on: 20 September, 2024

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