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In his written statement, Professor Makris recommended that patients with advanced fibrosis or cirrhosis are entered into a hepatocellular screening program, with six-monthly ultrasound scans and regular hepatology follow-up to detect early signs of liver failure. Those with an inherited bleeding disorder who have had Hepatitis C should be seen by a consultant hepatologist, rather than a more junior member of staff.

Published on: 20 September, 2024

An article by La Mura et al was published in "Blood Advances" titled "Residual burden of liver disease after HCV clearance in hemophilia: a word of caution in the era of gene therapy".

Published on: 20 September, 2024

An article by Isfordink et al was published in "Haemophilia" titled "Liver-related complications before and after successful treatment of chronic hepatitis C virus infection in people with inherited bleeding disorders".

Published on: 20 September, 2024

An article published in the "Journal of Hepatology" titled "EASL Recommendations on Treatment of Hepatitis C" described the optimal management of patients with acute and chronic HCV infections and included recommendations on appropriate follow up.

Published on: 20 September, 2024

The guidelines from the European Association for the Study of the Liver covered the various types of monitoring appropriate for individuals who have had a diagnosis of Hepatitis C.

Published on: 20 September, 2024

Describing the situation in Northern Ireland, Dr Joanne McClean noted that "HCV treatment has been predominantly delivered through specialist hepatology services".

Published on: 20 September, 2024

One witness ('Paul') described a contrast between his difficulty in accessing Hepatitis C treatment and that which he received for HIV.

Published on: 20 September, 2024

The Expert Report to the Infected Blood Inquiry: Palliative Care in Advanced Liver Disease noted the funding and commissioning of palliative care services varies throughout the UK.

Published on: 20 September, 2024

Rachael Watkins' mother was refused hospice and palliative care due to her hepatitis status.

Published on: 20 September, 2024

Alison Purseglove's husband, Ian, did not receive adequate palliative care: "The hospital was unprepared for the death and as a result it was, to my sadly expert eyes, extremely badly managed, protracted and distressing for both Ian and me."

Published on: 20 September, 2024

A hospice was not able to carry out paracentesis for Jane Chapman due to lack of expertise and had to transfer her to a nearby hospital.

Published on: 20 September, 2024

A witness's husband was not given the opportunity to be drained of fluid build-up in his stomach.

Published on: 20 September, 2024

Dr Benjamin Hudson noted that palliative care in liver disease is a developing subspecialty.

Published on: 20 September, 2024

Dr Hazel Woodland was of the view that resourcing was a problem in palliative care and care for hepatology patients generally.

Published on: 20 September, 2024

Dr Fiona Finlay noted that access to palliative case differs depending upon which country the patient is located in the UK.

Published on: 20 September, 2024

Professor Charles Hay commented that end-of-life care is a specialised area of medicine and nursing, and its provision varies across the country.

Published on: 20 September, 2024

The Gordon-Smith family felt let down by the NHS when they learnt that TACE treatment was not successful and the cancer was spreading. There was no follow up from palliative care at that point.

Published on: 20 September, 2024

When Seamus Conway was admitted to the hospital, his family had to fight for the appropriate pain relief for him.

Published on: 20 September, 2024

Seamus Conway was not provided with adequate haemophilic care before he died.

Published on: 20 September, 2024

Debra Pollard, lead nurse specialist at the Royal Free Haemophilia and Thrombosis Centre, recalled her close liason with palliative care but due to stigma attached to HIV, palliative care and some hospices would initially refuse to accept HIV patients.

Published on: 20 September, 2024

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