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The first meeting of the reference centre directors discussed difficulties concerning the use and supply of Factor 8.

Published on: 27 September, 2024

Reference centre directors discussed the question of taking part in TV programmes, noting that such programmes could distort facts and present biased views.

Published on: 27 September, 2024

Reference centre directors agreed that DHSS representatives who were invited to attend Haemophilia Reference Centre Directors meetings for specific purposes as observers should only receive that part of the minutes which referred to the items for which they had been invited to attend and to which they had made a contribution.

Published on: 27 September, 2024

Professor Tuddenham accepted in hindsight that the risk of factor concentrates transmitting blood-borne infections was not sufficiently appreciated.

Published on: 27 September, 2024

Professor Tuddenham told the Inquiry that DDAVP was not used regularly at the Royal Free until some time after 1980.

Published on: 27 September, 2024

Professor Tuddenham became aware of the association between people with haemophilia receiving factor concentrates and AIDS.

Published on: 27 September, 2024

Dr Peter Kirk reported to the haemophilia centre directors on the third trial of prophylactic treatment of patients at Treloar's.

Published on: 27 September, 2024

Dr Craske presented a written report on the study of hepatitis in haemophilic patients and outlined the findings to haemophilia centre directors.

Published on: 27 September, 2024

The Haemophilia Centre Handbook was produced by the Royal Free Hospital and published by Immuno. It contained an explanation of the arrangements for the collection of supplies of cryoprecipitate for home treatment.

Published on: 27 September, 2024

The Haemophilia Centre Handbook recorded that "All Haemophilia Centres now teach most of their severely affected patient to treat themselves at home

Published on: 27 September, 2024

The role of the designated reference centres in England and Wales was coordinating the functioning of the haemophilia service. Many centres in England and Wales were relatively small and look to larger reference centres for guidance and advice

Published on: 27 September, 2024

The topic of home treatment policy was discussed at this haemophilia centre directors meeting. Dr Antony Brittan's film on home treatment was shown and formed the basis for the discussion. Dr Matthews outlined the policy at Oxford was using freeze dried concentrate and Dr Dormandy that the Royal Free Hospital was using cryoprecipitate

Published on: 27 September, 2024

Dr Biggs after sending around a protocol for a clinical trial to confirm whether it was better for patients to have prophylactic or on demand treatment concluded that a trial would be difficult to organise but was needed, and that perhaps the only place where it could be done would be at Lord Mayor Treloar College.

Published on: 27 September, 2024

At a Haemophilia Directors' meeting many of the haemophilia centre directors were pushing to obtain permission to purchase the good commercial blood products manufactured overseas

Published on: 27 September, 2024

At a joint meeting of haemophilia centre directors and blood transfusion directors, it was stressed that home therapy was becoming more accepted and widespread and was improving patients' lives. Some directors of haemophilia centres were buying commercial concentrates for use in home therapy

Published on: 27 September, 2024

At a meeting of Haemophilia Centre directors Dr Maycock "said that although the screening of donors...would reduce the number of infected batches, all infected batches would not be excluded since the tests would not pick up all levels of Hepatitis B virus and some Hepatitis was caused by viruses not detected by the test".

Published on: 27 September, 2024

At a meeting of Haemophilia Centre directors it was recorded "that a study home therapy in patients with haemophilia was being organised at St Thomas' and the Oxford Centre . Also discussed at this meeting was hepatitis, liver function tests and pool sizes.

Published on: 27 September, 2024

At the 8th meeting of the UK Haemophilia Centre directors it was recorded that during 1976 that 729 patients had been on home treatment.

Published on: 27 September, 2024

In a paper by Peter Jones titled "Home Treatment Working Party" 87 haemophilia B patients were recorded as being on home therapy and 65 haemophilia A patients were recorded as receiving prophylaxis in 1978 which was about double the amount of those in 1977.

Published on: 27 September, 2024

In a paper titled "Jaundice and factor VIII antibodies in treated patients with haemophilia and Christmas disease" a suggestion was made that "Perhaps now that the virus associated Australian antigen can be studied a method will be found to remove that antigen from concentrated materials". The paper's authors concluded that "We feel that the increased risk of clinical illness is not so great a to overbalance the advantages of the use of concentrates".

Published on: 27 September, 2024

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