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The Creutzfeldt-Jakob Disease Incidents Panel produced a report recommending which groups should be told they had an increased risk of vCJD for public health purposes from implicated plasma, and setting out notification timelines.

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It had been identified that three patients had developed vCJD almost certainly as a consequence of receiving blood transfusions.

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Whereas people who had received transfusions were only notified if a donor went on to be diagnosed with vCJD, patients undergoing surgery or endoscopy were now to be asked if they had received blood transfusions from 80 or more donors since 1980 and considered at increased risk if so.

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A witness told the inquiry that he had needed his gallbladder removed having been infected with Hepatitis C and the surgeon told him "You are an expensive patient. We had to archive everything in the theatre because you have a variant CJD risk".

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The Working Party of the Committee on Proprietary Medicinal Products supported the UK recommendation that there should be a recall of batches of blood products if a blood donation to a plasma pool was subsequently found to have been made from a person who developed nvCJD.

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A witness described her husband being refused endoscopies due to vCJD risk, and they ended up having to book a private appointment for his treatment, costing thousands of pounds.

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Transmission studies in combination with surveillance data provided "compelling evidence" of a link between BSE and vCJD.

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Dr Kenneth Calman, CMO, was quoted in a Department of Health press release as saying he was satisfied that there was no scientific evidence of a link between meat eating and development of CJD,

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Recombinant was made available for all patients in Wales from 1997.

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In a background note for the House of Commons, it was stated that the Secretary of State had agreed to subsidise the additional cost of moving from plasma-derived Factor 8 to the commercial synthetic product, which could take a number of years.

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The Scottish Office made sufficient funding available for recombinant Factor 8 for young or new patients, but in due course this was to extend to all patients.

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An interim trust was set up in April 2001 and interim payments of £25,000 would be made to families of those who had been diagnosed with vCJD.

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In the CJDIP document on the management of possible exposure to CJD through medical procedures, the section on managing blood incidents had been greyed out as it had not yet been finalised.

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It was only in the financial year 2004/5 that all patients with Haemophilia A in the UK were treated with recombinant Factor 8.

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In a paper published by the Department of Health into research on a link between new variant CJD and BSE, the publication of the latest scientific advice concluded that the evidence that had accumulated since March 1996 was consistent with the hypothesis that nvCJD was caused by exposure to the BSE agent.

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The Lothian Research Ethics Committee was where the NCJDSU had to apply to for ethical clearance for proposed retrospective study to examine the possible link between CJD and blood transfusion, known at the TMER study (Transfusion Medicine Epidemiology Review) on the condition that anyone traced as a result of the study, would not be told of their exposure.

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A study showed that there was a prevalence of infection of about 1 in 4000 people, albeit from a limited sized study.

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The Committee on Safety of Medicines recommended that blood products should not be sourced from UK plasma, due to the theoretical risk that nvCJD could be transmitted by blood products which could not be discounted.

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The chairman of the Spongiform Encephalopathy Advisory Committee reported he had received a letter from Mr and Mrs Churchill, the parents of one of the nvCJD victims, asking for SEAC to consider whether there was a causal link between BSE and nvCJD.

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A risk assessment for the transmission of vCJD via surgical instruments was produced by the Department of Health in January 2001.

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