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Professor Charles Hay in evidence acknowledged that by contrast with Manchester and Liverpool where there was little prophylaxis during the 1980s, centres such as Newcastle and Treloar's adopted it much earlier.

Published on: 08 August, 2024

When David Watters joined the Haemophilia Society in early 1981 there were two part-time secretaries working only in the mornings, who were the only other paid employees.

Published on: 24 July, 2024

In his oral evidence, David Watters described how at the outset his paid role was regarded with suspicion by a number of trustees.

Published on: 24 July, 2024

It was suggested in oral evidence that in February 1983 there were around 1,500 members of the Haemophilia Society. Members included "interested" parties, such as family members, nurses and social workers.

Published on: 24 July, 2024

Haemophilia Society trustees attended large London haemophilia centres but did not appreciate the fact that at a local outpatient level "there was really no informed knowledge of haemophilia by the medics who were looking after patients".

Published on: 24 July, 2024

The Haemophilia Society received medical journals from The Lancet and The British Medical Journal but these were rarely ever read. If an article was considered relevant it would be brought to the trustees' attention.

Published on: 24 July, 2024

The Haemophilia Society would have received information from newspaper journalists, pharmaceutical companies, civil servants at the Department of Health and Social Security, the Medical Advisory Panel and the UKHCDO.

Published on: 24 July, 2024

At the beginning of his time at the Haemophilia Society, David Watters suggested there was a "a lack of outreach and lack of grasp of big issues".

Published on: 24 July, 2024

David Watters stated in oral evidence that the make-up of the Medical Advisory Panel was not as diverse as it could have been and consisted of individuals "who had been around for a very long time".

Published on: 09 October, 2024

David Watters stated in oral evidence that the Haemophilia Society prioritised maintaining close relationships with influential clinicians.

Published on: 24 July, 2024

David Watters saw the appointments to the Medical Advisory Panel in the 1980s as nepotistic.

Published on: 24 July, 2024

In the 1980s the Haemophilia Society only took advice from senior members of the UKHCDO which kept them from examining policies on treatment and recommendations made by the UKHCDO.

Published on: 24 July, 2024

In 2017 David Watters was shown a letter produced by the Department of Health around 1980, in which Professor Bloom was told to advise patients to continue to use imported blood products as the benefits outweighed the risks.

Published on: 24 July, 2024

At a board meeting of the Haemophilia Society David Watters and Clive Knight had "great trouble" convincing the trustees of the Executive Committee that AIDS was going to be a problem.

Published on: 24 July, 2024

There was no reference made to AIDS at the Executive Committee of the Haemophilia Society on 3 March 1983.

Published on: 24 July, 2024

At a meeting between the Minister of State for Health and the Haemophilia Society, David Watters believed that self-sufficiency should not be achieved solely for economic reasons, but that "it was based entirely on the health of people with haemophilia."

Published on: 24 July, 2024

In his evidence to the Inquiry, David Watters agreed that non-A non-B Hepatitis was not foremost in the Society's mind in 1981 and it was considered a mild condition.

Published on: 24 July, 2024

Dr Brian McClelland told the Inquiry in his oral evidence that he decided to prepare a leaflet on AIDS as it was "fairly obvious" that it was important to take action to reduce the risk to transfusion recipients and that there had been the suggestion in local media that Edinburgh could become the "AIDS capital of the North".

Published on: 25 July, 2024

In evidence to the Inquiry, the Medical Ethics Expert Panel confirmed that it is a fundamental ethical principle for a patient to be informed of the risks which are material and significant to them even if that means they might refuse a particular treatment.

Published on: 06 August, 2024

Oral evidence describes how during the 1970s, Dr Davies had a preference for locally sourced materials due to the risks associated with hepatitis and that novel viruses may be introduced to the local population.

Published on: 27 September, 2024

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