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Inquiry publishes expert report on Public Health and Administration

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Dr Lane in a letter to the reference centre directors stated that it was agreed that a meeting should be held "to discuss AIDS in relation to the management of haemophiliacs and the implications for treatment with factor VIII concentrates" and that 10 December was the first date suitable for the majority of participants.

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In a response to Dr Lane, Professor Bloom wrote that "clearly the matter is of great importance and has certainly come to a head with the Australian experience and with the unfortunate death of the Newcastle patient. I am only glad that we had decided in advance of these events to take some action"

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In a letter to Dr Lane, Dr Rizza suggested a number of questions which he thought needed to be considered at the meeting, including whether directors should now switch to using only heat-treated Factor 8 concentrates.

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Dr Lane produced an agenda for the meeting with the Haemophilia Centre Directors.

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In the US over 6,000 cases of AIDS were reported including 52 people with haemophilia and 102 cases in the UK with 3 reported in people with haemophilia.

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Professor Bloom wrote to Dr Ludlam seeking comments on his draft notes of Reference Centre Directors meeting on 14 December 1984.

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Professor Bloom wrote to Dr Lane seeking comments on his draft notes of Reference Centre Directors meeting on 14 December 1984.

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UKHCDO's AIDS Group was told that the Haemophilia Reference Centre AIDS Advisory Document dated 14 December 1984 was sent to all haemophilia centres in the UK.

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UKHCDO's AIDS Group heard a difference of opinion with regard to Factor 9. "Some Centres had stopped using NHS factor IX and were now using heated commercial factor IX while others intended to continue for the meantime with the unheated NHS factor IX."

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Annual return for 1983 shows Frimley Park Haemophilia Centre treated 4 Haemophilia A patients and 1 von Willebrand's disease patient that year.

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Dr Dempsey stated that there was "resistance among the haemophilia treaters about the significance of concentrate and the emerging AIDS problem."

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Dr Dempsey commented that he had "no major doubt" or "no real doubt" that AIDS was transmissible by blood or blood products "because any alternative theory didn't really seem to hold water"

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Dr Dempsey mentioned that the best decision would have been to go onto NHS material, as opposed to cryoprecipitate in the 1980s.

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After a child was admitted in 1981 following an accident where cryoprecipitate "failed to do the job that was asked of it on that occasion", Dr Dempsey's "confidence in cryoprecipitate" was shaken.

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In August 1980, cryoprecipitate was used "fairly exclusively" in the Royal Belfast Hospital for Sick Children haemophilia unit.

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Dr Dempsey stated that there were no separate annual returns for the royal Belfast Hospital for Sick Children. The returns were amalgamated with the adult haemophilia centre at the Royal Victoria Hospital and sent to Oxford "as a unified whole."

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In Belfast, children with bleeding disorders were treated at the Royal Belfast Hospital for Sick Children until around the age of 14. They were then transferred to the haemophilia centre at the Royal Victoria Hospital.

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According to Dr Dempsey, in regards non-A non-B Hepatitis, around 1980 there was a "general feeling" amongst clinicians that it was not a major concern, but there were patients who did have evidence of chronic liver disease.

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Dr Dempsey recalled that non-A non-B Hepatitis was not thought sufficiently serious to merit withdrawal of "the only really effective treatment for severe/moderate haemophilia" in reference to factor concentrate.

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